Portrait de Catherine Régis

Catherine Régis

Membre académique associé
Chaire en IA Canada-CIFAR
Professeure titulaire, Université de Montréal
Sujets de recherche
Apprentissage en ligne
Apprentissage profond

Biographie

Catherine Régis est professeure titulaire de droit à l'Université de Montréal (UdeM), membre académique associée à Mila et co-directrice du Programme de recherche de l’Institut canadien de la sécurité de l’IA (ICSIA) et directrice de l'innovation sociale et de la politique internationale chez IVADO. En plus de détenir une chaire en IA Canada-CIFAR à Mila – Institut québécois d’intelligence artificielle ainsi qu'une chaire de recherche du Canada en droit et politique de la santé, elle est associée principale de recherche au Forum intellectuel de l'Université de Cambridge. De 2021 à 2023, elle a été vice-présidente associée à la planification stratégique et à l'innovation numérique responsable de l'UdeM.

Professeure Régis est très active sur la scène internationale. En 2022, elle a été nommée coprésidente du groupe de travail sur l'IA responsable du Partenariat mondial sur l'IA (GPAI), qui comprend 29 États membres (dont le Canada, la France, l'Allemagne, l'Inde, le Japon et les États-Unis) pour une période de deux ans. De 2020 à 2024, elle a dirigé le groupe de travail sur l'innovation numérique et l'IA responsables de l'Alliance U7+, qui comprend plus de 50 universités du monde entier. En 2022, elle a été sélectionnée comme boursière pour le programme de l'Institut des Nations unies pour la formation et la recherche (UNITAR) en diplomatie scientifique et, en 2024, elle est devenue membre du comité technique du programme de l'UNESCO sur l'IA et l'État de droit.

Professeure Régis dispose d'une vaste expérience dans la conduite de missions de conseil et de formation, tant sur le territoire canadien qu'à l'international. Elle a été professeure invitée dans différents pays et a présenté ses travaux à des institutions telles que l'OCDE, l'Organisation mondiale de la santé, l'Institut des Nations unies pour la recherche sur le désarmement, l'Alan Turing Institute, la Cour suprême du Canada et le Forum des ministres d'Aspen ; dans plus de 20 universités du monde entier (par exemple, Cambridge, Costa Rica, Édimbourg, Georgetown, Osaka, Oxford, Sciences Po Paris, Sorbonne, Toronto) ; et lors de conférences de haut niveau, notamment le Sommet sur la sécurité de l'IA à Bletchley Park en 2023 et NeurIPS. Elle participe au développement de la diplomatie scientifique (qui vise à renforcer les compétences en matière de leadership et de communication afin de faire le pont entre la science et la diplomatie dans l'élaboration des politiques) aux niveaux national et international. Elle guide également les gouvernements, les organisations publiques et les organisations internationales (par exemple, les centres de santé universitaires, les médiateurs et les ministères de la santé ou de l'innovation, l'UNESCO, l'OMS, l'ONU) sur l'orientation politique et les projets d'IA responsable.

La plupart de ses travaux portent sur la meilleure façon de réglementer l'IA, tant au niveau national qu'international, et, plus généralement, sur l'élaboration d'approches responsables en matière de gouvernance de l'IA. Ses principaux objectifs sont les suivants : 1) veiller à ce que les considérations relatives aux droits de l'homme soient intégrées tout au long du cycle de vie de l'IA ; 2) aider les décideur·euse·s politiques à élaborer et à mettre en œuvre des stratégies normatives qui contribueront à la répartition équitable des avantages de l'IA entre les nations ; et 3) contribuer à la création des outils de réglementation et de gouvernance nécessaires à la conception et au déploiement responsables de l'IA dans des systèmes clés tels que les soins de santé et la justice.

Étudiants actuels

Postdoctorat - UdeM
Doctorat - McGill
Superviseur⋅e principal⋅e :

Publications

Aligner l’intelligence artificielle avec les objectifs de développement durable (ODD) des Nations unies
Marie Zumstein
Karine Gentelet
Policy context and digital development: a comparative study of trajectories in 4 Canadian academic health centers over 30 years
Aude Motulsky
Susan Usher
Pascale Lehoux
Trish Reay
Paul Hebert
Lise Gauvin
Alain Biron
G. Ross Baker
Marie-Pierre Moreault
Johanne Préval
Jean-Louis Denis
The digitalization of health records stands to improve decision-making at clinical, administrative, and policy level. Efforts follow various… (voir plus) paths and are closely intertwined with health system and organizational configurations. Problems persist in both uptake and use. This study explores the digitalization trajectories of academic health centers (AHCs) to understand tensions between organizational and government strategies and their impact on digital development. AHCs play a leadership role within health systems in data-driven improvement. This retrospective case study draws on documentary, observational, and interview data to compare digitalization efforts over 3 decades in 4 AHCs in the province of Quebec (Canada). At system level, strategy shifted from supporting multilayered development that encouraged bottom-up initiatives in the first decade of the 2000s, to harmonizing clinical information systems in a highly prescriptive manner after 2010. AHCs experienced the shift differently according to concurrent impacts of health system restructuring, and internal choices around electronic health record (EHR) systems and implementation priorities. Digital maturity remained low in all 4 AHCs. Coordination between system strategies and organizational strategies in AHCs was neglected in early digital development in Québec and improved only after an intense period of prescription and resistance. Confrontation highlighted tensions around different objectives at AHC and system level, competing missions within AHCs, and trade-offs between relying on commercial EHRs and developing publicly owned systems, all of which ultimately influence EHR implementation. The different experiences of focal organizations with digitalization underline the importance of adapting national strategies and providing support to implementers, building on acquired strengths, and arriving at the right balance of guidance from the top and autonomy to develop innovative capacities.
L’appréhension empirique du leadership normatif d’une organisation internationale : l’exemple de l’Organisation mondiale de la Santé
Pierre Larouche
Jean-Louis Denis
Miriam Cohen
En plein essor, la recherche empirique en droit participe à la création de nouvelles connaissances et ouvre aux juristes d’autres voies … (voir plus)pour étudier une question, un phénomène. Oser l’empirisme n’est pas chose aisée, mais les auteurs du présent article ont pris ce virage et proposent d’en exposer le récit. En construisant deux méthodes distinctes (pour deux projets), ils ont pu tester les possibilités qu’offre la recherche empirique pour appréhender l’enjeu du leadership normatif de l’Organisation mondiale de la Santé (OMS). Destiné à aiguiller à partir d’une expérience celles et ceux qui voudraient s’aventurer dans l’empirisme, cet article met en lumière les défis rencontrés, mais surtout les atouts d’une telle recherche. La richesse des informations obtenues a en effet grandement bonifié la compréhension de la trajectoire des normes de l’OMS et de leurs impacts sur les États.
The empirical apprehension of the normative leadership of an international organization: The example of the World Health Organization
Pierre Larouche
Jean-Louis Denis
Miriam Cohen
The Normative Leadership of the World Health Organization : a quantitative analysis 
Jean-Louis Denis
Pierre Larouche
Miriam Cohen
Challenges for impact evaluation of WHO’s normative output
Jean-Louis Denis
Pierre Larouche
Miriam Cohen
The black box of the relationship between breast cancer patients and accompanying patients: the accompanied patients' point of view
Marie-Pascale Pomey
Monica Iliescu Nelea
Cécile Vialaron
Louise Normandin
Marie-Andrée Côté
Mado Desforges
Pénélope Pomey-Carpentier
Nesrine Adjtoutah
Israël Fortin
Isabelle Ganache
Zeev Rosberger
Danielle Charpentier
Lynda Bélanger
Michel Dorval
Djahanchah P. Ghadiri
Mélanie Lavoie-Tremblay
Antoine Boivin
Jean-François Pelletier
Nicolas Fernandez … (voir 2 de plus)
Alain M. Danino
Michèle de Guise
The PAROLE-Onco program was introduced in the province of Quebec, Canada in 2019. It integrates accompanying patients (APs), i.e., people wh… (voir plus)o have been affected by cancer, into the clinical team as full members. These APs use their experiential knowledge with people undergoing treatment and with clinical teams. The aim of this paper is to evaluate, within the framework of two university medical centers, the perceptions of breast cancer patients who receive support from APs, particularly in terms of their active involvement in their care trajectory. A qualitative study based on semi-structured interviews with accompanied patients was performed. Fourteen individual interviews were conducted between July and September 2021 with women presenting different profiles in terms of age, education, professional status, type of treatment, family situation, and clinical background. The data were analyzed using thematic analysis, focusing on patients’ perceptions of APs’ contributions and suggested improvements for accessing AP support. Three themes emerged from the semi-structured interviews: communication modalities used to connect patients with their APs, the characteristics of the support provided by APs, and the perceived effects of this support on the patients. Patients expressed a preference for telephone communication, highlighting its convenience and accessibility. The support provided by APs included emotional and informational support, neutrality, and adaptability. This relationship improved patient communication, reduced anxiety, helped regain control, and enhanced overall quality of life. The results emphasized the added value of APs in complementing the support offered by healthcare professionals. Patients noted the critical role of APs in helping them navigate the healthcare system, better understand their treatment processes, and manage their emotions. The ability of APs to provide practical advice and emotional reassurance was particularly valued. Overall, the findings underscored the significant impact of AP support on patients’ experiences and highlighted areas for enhancing this service. This study highlights, during the care trajectory of people affected by breast cancer, APs’ contribution to patients’ emotional well-being because they improve, in particular, the management of emotions and communication with health professionals. The online version contains supplementary material available at 10.1186/s12885-024-12585-z.
Enjeux juridiques propres au modèle émergent des patients accompagnateurs dans les milieux de soins au Québec
Léa Boutrouille
Marie-Pascale Pomey
The World Health Organization as an engine of ideational robustness
Jean-Louis Denis
Pierre Larouche
Miriam Cohen
Marie-Andree Girard
The paper focuses on the role of the World Health Organization (WHO) in promoting a healthy world population as a generative and robust idea… (voir plus) within health policy. The WHO’s health credo transcends national boundaries to promote health globally. It is embedded in norms, values, and standards promulgated by the organization and contributes in shaping the health responses of national governments. Ideational robustness refers to the ability of the WHO to adapt its health credo to changing contexts and circumstances, thus promoting the legitimacy of an international health order. Disturbances, including the Covid-19 pandemic, test the credo’s robustness, forcing the WHO to constantly work at reframing ideas to adapt to political forces and competing logics that structure the field of international health. Empirically, the paper is based on an historical analysis of the evolution of the health credo of the WHO since its inception. Qualitative content analysis of secondary sources, such as policy documents, explores how ideational work performed by WHO leaders impacts on the organization’s position and legitimacy. Ideational robustness appears to be largely influenced by leadership vision, preexisting organizational structure, and the political economy of international health. Ideational robustness appears as a powerful yet insufficient ingredient of policy success.
Integrating accompanying patients into clinical oncology teams: limiting and facilitating factors
Marie-Pascale Pomey
Jesseca Paquette
Monica Iliescu Nelea
Cécile Vialaron
Rim Mourad
Karine Bouchard
Louise Normandin
Marie-Andrée Côté
Mado Desforges
Pénélope Pomey-Carpentier
Israël Fortin
Isabelle Ganache
Zeev Rosberger
Danielle Charpentier
Marie-France Vachon
Lynda Bélanger
Michel Dorval
Djahanchah P. Ghadiri
Mélanie Lavoie-Tremblay … (voir 5 de plus)
Antoine Boivin
Jean-François Pelletier
Nicolas Fernandez
Alain M. Danino
Michèle de Guise
Objectives Since 2018, four establishments in Quebec have been instrumental in implementing the PAROLE-Onco program, which introduced accomp… (voir plus)anying patients (APs) in healthcare teams to improve cancer patients’ experience. APs are patient advisors who have acquired specific experiential knowledge related to living with cancer, using services, and interacting with healthcare professionals. They are therefore in a unique and reliable position to be able to provide emotional, informational, cognitive and navigational support to patients dealing with cancer. We aimed to explore APs’ perspectives regarding the limiting and facilitating factors in terms of how they are integrated into the clinical oncology teams. Methods A qualitative study based on semi-structured interviews and focus groups was conducted with 20 APs at the beginning of their intervention (T1) and two years afterwards (T2). Limiting and facilitating factors of APs’ integration into clinical teams were analyzed in terms of governance, culture, resources and tools. Results The most significant limiting factors raised by APs to be integrated into clinical teams were: governance involvement, organizational boundaries, team members' availabilities, and confusion about the specific roles played by APs. Communication challenges were also raised, leading to inadequate promotion of the program to patients. The lack of time, space and compensation were also mentioned as limiting factors. Creating opportunities for team members to meet APs, building trust and teaching team members how APs’ activities are complementary to theirs were enhancing factors. Other facilitators include APs being involved in decision-making committees, being leaders in the PAROLE-Onco program promotion to patients and clinical team members and creating opportunities to communicate with team members to help enhance their work and provide feedback to improve patient services. Awareness of APs’ added value for the team and patients is also a key facilitator. Regarding tools, offering accompanying services by telephone allows both patients and APs to benefit from the flexibility they need. Conclusion Over time, APs were able to identify the best factors for successful implementation. Recommendations include APs and professionals working in co-construction on organization, leadership, resources, and status factors. This could help catalyze a change in culture within health establishments and allow people dealing with cancer to benefit from the experiential knowledge of other patients within their clinical team.
Human-Centered AI
Jean-Louis Denis
Maria Luciana Axente
Atsuo Kishimoto
Understanding the normative leadership of the world health organization (who): a mixed-method approach
Miriam Cohen
Jean-Louis Denis
Pierre Larouche
Marie-Andree Girard