Portrait of Catherine Régis

Catherine Régis

Associate Academic Member
Canada CIFAR AI Chair
Full Professor, Université de Montréal
Research Topics
Deep Learning
Online Learning

Biography

Catherine Régis is Full Professor at the Faculty of Law of Université de Montréal (UdeM), Co-director of the Canadian AI Safety Institute research program and Director of Social Innovation and International Policy at IVADO. In addition to holding a Canada CIFAR Chair in AI and Human Rights and a Canada Research Chair in Health Law and Policy, she is a Senior Research Associate at the Intellectual Forum of the University of Cambridge. From 2021 to 2023, she was UdeM’s Associate VP for Strategic Planning and Responsible Digital Innovation.

Prof Régis is very active on the international scene. In 2022, she was appointed Cochair of the Working Group on Responsible AI of the Global Partnership on AI (GPAI), which comprises 29 member states (including Canada, France, Germany, India, Japan and the USA) for a period of two years. From 2020 to 2024, she led the Working Group on Responsible Digital Innovation and AI of the U7+ Alliance, which includes more than 50 universities from around the world. In 2022, she was a selected Fellow for the UN’s Institute for Training and Research’s program (UNITAR) in Science Diplomacy and, in 2024, she became part of the Technical Committee for UNESCO’s AI and the Rule of Law Program.

Prof Régis is used to executing consulting or training assignments both in Canada and elsewhere. She has been a visiting professor in different countries, and she has presented her work at institutions such as the OECD, the World Health Organization, the United Nations Institute for Disarmament Research, the Alan Turing Institute, the Supreme Court of Canada, and the Aspen Ministers Forum; in more than 20 universities worldwide (e.g., Cambridge, Costa Rica, Edinburgh, Georgetown, Osaka, Oxford, Sciences Po Paris, Sorbonne, Toronto); and in high-level conferences, including the AI Safety Summit at Bletchley Park in 2023 and NeurIPS. She is involved in the development of Science Diplomacy (which aims at building leadership and communication skills to bridge science and diplomacy in policymaking) at the national and international levels. She also guides governments, public organizations and international organizations (e.g., academic health centres, ombudspeople and ministries of health or innovation, UNESCO, WHO, UN) on policy orientation and responsible AI projects. 

Most of her work explores how to best regulate AI at the national and international levels and to build responsible AI governance approaches more broadly. Her main objectives are: 1) to ensure human rights considerations are integrated throughout the AI life cycle; 2) to help policymakers map out and implement normative strategies that will contribute to the equitable distribution of AI benefits across nations; and 3) to inform the creation of the regulatory and governance tools needed for the responsible design and deployment of AI in key systems like healthcare and justice.

Current Students

Postdoctorate - Université de Montréal
PhD - Université de Montréal
PhD - McGill University
Principal supervisor :

Publications

Aligner l’intelligence artificielle avec les objectifs de développement durable (ODD) des Nations unies
Marie Zumstein
Karine Gentelet
Policy context and digital development: a comparative study of trajectories in 4 Canadian academic health centers over 30 years
Aude Motulsky
Susan Usher
Pascale Lehoux
Trish Reay
Paul Hebert
Lise Gauvin
Alain Biron
G. Ross Baker
Marie-Pierre Moreault
Johanne Préval
Jean-Louis Denis
The digitalization of health records stands to improve decision-making at clinical, administrative, and policy level. Efforts follow various… (see more) paths and are closely intertwined with health system and organizational configurations. Problems persist in both uptake and use. This study explores the digitalization trajectories of academic health centers (AHCs) to understand tensions between organizational and government strategies and their impact on digital development. AHCs play a leadership role within health systems in data-driven improvement. This retrospective case study draws on documentary, observational, and interview data to compare digitalization efforts over 3 decades in 4 AHCs in the province of Quebec (Canada). At system level, strategy shifted from supporting multilayered development that encouraged bottom-up initiatives in the first decade of the 2000s, to harmonizing clinical information systems in a highly prescriptive manner after 2010. AHCs experienced the shift differently according to concurrent impacts of health system restructuring, and internal choices around electronic health record (EHR) systems and implementation priorities. Digital maturity remained low in all 4 AHCs. Coordination between system strategies and organizational strategies in AHCs was neglected in early digital development in Québec and improved only after an intense period of prescription and resistance. Confrontation highlighted tensions around different objectives at AHC and system level, competing missions within AHCs, and trade-offs between relying on commercial EHRs and developing publicly owned systems, all of which ultimately influence EHR implementation. The different experiences of focal organizations with digitalization underline the importance of adapting national strategies and providing support to implementers, building on acquired strengths, and arriving at the right balance of guidance from the top and autonomy to develop innovative capacities.
L’appréhension empirique du leadership normatif d’une organisation internationale : l’exemple de l’Organisation mondiale de la Santé
Pierre Larouche
Jean-Louis Denis
Miriam Cohen
En plein essor, la recherche empirique en droit participe à la création de nouvelles connaissances et ouvre aux juristes d’autres voies … (see more)pour étudier une question, un phénomène. Oser l’empirisme n’est pas chose aisée, mais les auteurs du présent article ont pris ce virage et proposent d’en exposer le récit. En construisant deux méthodes distinctes (pour deux projets), ils ont pu tester les possibilités qu’offre la recherche empirique pour appréhender l’enjeu du leadership normatif de l’Organisation mondiale de la Santé (OMS). Destiné à aiguiller à partir d’une expérience celles et ceux qui voudraient s’aventurer dans l’empirisme, cet article met en lumière les défis rencontrés, mais surtout les atouts d’une telle recherche. La richesse des informations obtenues a en effet grandement bonifié la compréhension de la trajectoire des normes de l’OMS et de leurs impacts sur les États.
The empirical apprehension of the normative leadership of an international organization: The example of the World Health Organization
Pierre Larouche
Jean-Louis Denis
Miriam Cohen
The Normative Leadership of the World Health Organization : a quantitative analysis 
Jean-Louis Denis
Pierre Larouche
Miriam Cohen
Challenges for impact evaluation of WHO’s normative output
Jean-Louis Denis
Pierre Larouche
Miriam Cohen
The black box of the relationship between breast cancer patients and accompanying patients: the accompanied patients' point of view
Marie-Pascale Pomey
Monica Iliescu Nelea
Cécile Vialaron
Louise Normandin
Marie-Andrée Côté
Mado Desforges
Pénélope Pomey-Carpentier
Nesrine Adjtoutah
Israël Fortin
Isabelle Ganache
Zeev Rosberger
Danielle Charpentier
Lynda Bélanger
Michel Dorval
Djahanchah P. Ghadiri
Mélanie Lavoie-Tremblay
Antoine Boivin
Jean-François Pelletier
Nicolas Fernandez … (see 2 more)
Alain M. Danino
Michèle de Guise
The PAROLE-Onco program was introduced in the province of Quebec, Canada in 2019. It integrates accompanying patients (APs), i.e., people wh… (see more)o have been affected by cancer, into the clinical team as full members. These APs use their experiential knowledge with people undergoing treatment and with clinical teams. The aim of this paper is to evaluate, within the framework of two university medical centers, the perceptions of breast cancer patients who receive support from APs, particularly in terms of their active involvement in their care trajectory. A qualitative study based on semi-structured interviews with accompanied patients was performed. Fourteen individual interviews were conducted between July and September 2021 with women presenting different profiles in terms of age, education, professional status, type of treatment, family situation, and clinical background. The data were analyzed using thematic analysis, focusing on patients’ perceptions of APs’ contributions and suggested improvements for accessing AP support. Three themes emerged from the semi-structured interviews: communication modalities used to connect patients with their APs, the characteristics of the support provided by APs, and the perceived effects of this support on the patients. Patients expressed a preference for telephone communication, highlighting its convenience and accessibility. The support provided by APs included emotional and informational support, neutrality, and adaptability. This relationship improved patient communication, reduced anxiety, helped regain control, and enhanced overall quality of life. The results emphasized the added value of APs in complementing the support offered by healthcare professionals. Patients noted the critical role of APs in helping them navigate the healthcare system, better understand their treatment processes, and manage their emotions. The ability of APs to provide practical advice and emotional reassurance was particularly valued. Overall, the findings underscored the significant impact of AP support on patients’ experiences and highlighted areas for enhancing this service. This study highlights, during the care trajectory of people affected by breast cancer, APs’ contribution to patients’ emotional well-being because they improve, in particular, the management of emotions and communication with health professionals. The online version contains supplementary material available at 10.1186/s12885-024-12585-z.
Enjeux juridiques propres au modèle émergent des patients accompagnateurs dans les milieux de soins au Québec
Léa Boutrouille
Marie-Pascale Pomey
The World Health Organization as an engine of ideational robustness
Jean-Louis Denis
Pierre Larouche
Miriam Cohen
Marie-Andree Girard
The paper focuses on the role of the World Health Organization (WHO) in promoting a healthy world population as a generative and robust idea… (see more) within health policy. The WHO’s health credo transcends national boundaries to promote health globally. It is embedded in norms, values, and standards promulgated by the organization and contributes in shaping the health responses of national governments. Ideational robustness refers to the ability of the WHO to adapt its health credo to changing contexts and circumstances, thus promoting the legitimacy of an international health order. Disturbances, including the Covid-19 pandemic, test the credo’s robustness, forcing the WHO to constantly work at reframing ideas to adapt to political forces and competing logics that structure the field of international health. Empirically, the paper is based on an historical analysis of the evolution of the health credo of the WHO since its inception. Qualitative content analysis of secondary sources, such as policy documents, explores how ideational work performed by WHO leaders impacts on the organization’s position and legitimacy. Ideational robustness appears to be largely influenced by leadership vision, preexisting organizational structure, and the political economy of international health. Ideational robustness appears as a powerful yet insufficient ingredient of policy success.
Integrating accompanying patients into clinical oncology teams: limiting and facilitating factors
Marie-Pascale Pomey
Jesseca Paquette
Monica Iliescu Nelea
Cécile Vialaron
Rim Mourad
Karine Bouchard
Louise Normandin
Marie-Andrée Côté
Mado Desforges
Pénélope Pomey-Carpentier
Israël Fortin
Isabelle Ganache
Zeev Rosberger
Danielle Charpentier
Marie-France Vachon
Lynda Bélanger
Michel Dorval
Djahanchah P. Ghadiri
Mélanie Lavoie-Tremblay … (see 5 more)
Antoine Boivin
Jean-François Pelletier
Nicolas Fernandez
Alain M. Danino
Michèle de Guise
Objectives Since 2018, four establishments in Quebec have been instrumental in implementing the PAROLE-Onco program, which introduced accomp… (see more)anying patients (APs) in healthcare teams to improve cancer patients’ experience. APs are patient advisors who have acquired specific experiential knowledge related to living with cancer, using services, and interacting with healthcare professionals. They are therefore in a unique and reliable position to be able to provide emotional, informational, cognitive and navigational support to patients dealing with cancer. We aimed to explore APs’ perspectives regarding the limiting and facilitating factors in terms of how they are integrated into the clinical oncology teams. Methods A qualitative study based on semi-structured interviews and focus groups was conducted with 20 APs at the beginning of their intervention (T1) and two years afterwards (T2). Limiting and facilitating factors of APs’ integration into clinical teams were analyzed in terms of governance, culture, resources and tools. Results The most significant limiting factors raised by APs to be integrated into clinical teams were: governance involvement, organizational boundaries, team members' availabilities, and confusion about the specific roles played by APs. Communication challenges were also raised, leading to inadequate promotion of the program to patients. The lack of time, space and compensation were also mentioned as limiting factors. Creating opportunities for team members to meet APs, building trust and teaching team members how APs’ activities are complementary to theirs were enhancing factors. Other facilitators include APs being involved in decision-making committees, being leaders in the PAROLE-Onco program promotion to patients and clinical team members and creating opportunities to communicate with team members to help enhance their work and provide feedback to improve patient services. Awareness of APs’ added value for the team and patients is also a key facilitator. Regarding tools, offering accompanying services by telephone allows both patients and APs to benefit from the flexibility they need. Conclusion Over time, APs were able to identify the best factors for successful implementation. Recommendations include APs and professionals working in co-construction on organization, leadership, resources, and status factors. This could help catalyze a change in culture within health establishments and allow people dealing with cancer to benefit from the experiential knowledge of other patients within their clinical team.
Human-Centered AI
Jean-Louis Denis
Maria Luciana Axente
Atsuo Kishimoto
Understanding the normative leadership of the world health organization (who): a mixed-method approach
Miriam Cohen
Jean-Louis Denis
Pierre Larouche
Marie-Andree Girard